Find out how Jazz for Peace raises funds for over 850 Outstanding Causes! Harmony & Hope: Rick DellaRatta’s Fundraising Serenade for Epilepsy Advocate Roxanne Davenport and click below to watch FULL EPISODE on Spotify & Apple!
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S: 2 E: 20 Roxanne Davenport – Normal Life with Epilepsy
Roxanne Davenport is a writer and advocate for Epilepsy awareness. Her work with “Seize”ure The Day! and Defeating Epilepsy Foundation helps people around the world spreading epilepsy awareness. Defeating Epilepsy Foundation sends newsletters out to people around the world translated in their language. Her message is “people around the world need to know that people with epilepsy are normal.” And, as a piano player herself, she also believes that music can play a role through songs with lyrics that spread epilepsy awareness. All of these good vibrations plus her southern residency of Lewiston, North Carolina brought out a special medley by Rick of Mr. Bojangles and When it’s Sleepy Time Down South making this a one of a kind interview & what we hope will someday be a fundraising experience that also raises awareness for her outstanding mission and advocacy.
Epilepsy doesn’t hold her back or keep her down. She stares for 30 seconds and sometimes shakes her right hand. This is all because of a high fever when she was a baby. Sometimes she can hide having a seizure by leaving a room before it happens. She gets an aura before one.
She had them under control before her insurance made the drug store switch her medicine to a generic brand. Generic medicine is not as good as brand name for epilepsy. It doesn’t have the same amount of the working medication in some of the pills. There can be 80% of the medication and 20% placebo.
Since she had them under control, she was allowed to drive. Not knowing about the generic medicine at that time. She had a car wreck and her daughter was in the front seat with her. This caused her daughter to have a fractured ankle and she has had five surgeries on her ankle in five years. Today her daughter is strong! Whenever anyone asks how she broke her ankle, she never says my mom wrecked the car. She just says, I was in a car wreck.
Now Roxanne wants everyone to understand epilepsy. It effects 300,000 people in the USA alone. She thinks that she is the lucky one since now her seizures are only a few a month. Some people, including children, can have up to 300 a day.
Help her spread the word! Find out more about Roxanne at: http://about.me/roxanne_davenport
AND:
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